Thyroid Groups
 

Anyone know of a thyroid self help group in the local area?
I am particularly thinking of hypothyroidism. Any commnication on this subject welcome.

Re: Thyroid Groups
 

dont think there is one in accy.
had thyroid trouble since 1982 ? how long you?

Re: Thyroid Groups
 

Since 1993
Underactive. Less than 2.5 which is the lowest reading they take.
Don't know how long it took you to get diagnosed, with me it was nearly a year, by which time - well you can imagine. Went to the docs with several complaints, which with hind sight were obviously symptoms of it.
Considering it is such a common complaint with symptoms that should be obvious to a GP, can't understand why it took so long.
Don't know about you, but even with medication, I've never been anywhere near 100% well since.

Re: Thyroid Groups
 

GOOD DAYS BADDAYS 150ml a day checked every 6months then went 12months now back to 3, go next month they never get it right. it would be nice to be able to not want to fall asleep at the wrong time and be able to just feel ok

Re: Thyroid Groups
 

Nice to hear from someone who has the same problem.

The tiredness thing is a real problem.

How do you feel in a morning?

I always wake up feeling like I've got a hangover. Takes me ages to come round. Always have to make sure I allow enough time in the morning to become normal, otherwise I have a crap day!

Been to the docs recently, but he says there is no problem at the mo - just down to my age. They have no idea. The age thing actually complicates things.
Thinking of changing to a new one soon. Might get reassessed then.

Re: Thyroid Groups
 

wont  the Hospital be able to help ???
they should know the support groups in the area ???

Re: Thyroid Groups
 

Or ask your Consultant ;)

Re: Thyroid Groups
 

I don't have a consultant. Was diagnosed 10 years ago by my doctor. I wasn't referred. just started on the meds, (which I now have to take for the rest of my life)
you don't get any sort of follow up checks apart from regular blood tests, and just basically have to get on with it.

They don't give you any info, such as I have since learned from a variety of sources, like certain things food wise are BEST AVOIDED, and complications which arise. most of my info has come from the internet.

At least when you know other people have the same probs, when they are supposedly OK, It's not just you.

It is up to people to find out what they can from where ever and make an intelligent decision.

I know there are groups out there, but haven't found one round here yet.

Re: Thyroid Groups
 

ho sorry the med im taking is life long too

Re: Thyroid Groups
 

I leave the tablets near the kettle so I won't forget to take them. One of the things with the condition is it can cause memory problems.

What was I saying again??  ;D ;D

Re: Thyroid Groups
 

i have to take 8 in the morning and 6 at night but i also have to take one with me when i go out incase of a angina attack

Re: Thyroid Groups
 

3 every morning before i do anything

Re: Thyroid Groups
 

what did someone say about eating certain foods

Re: Thyroid Groups
 

Brussel sprouts,  turnips, cauliflower, cabbage  almonds, peanuts and walnuts sweet corn,  
soya – this combined with a high fibre diet causes too much thyroid hormone and iodine to be excreted from the body.
raw Swedes, turnips and kale - These are sometimes fed to cattle and comes to us via their milk products.

Did you know that fluoride was used in the past to treat hyperthyroidism and that it was frequently used at levels below the current “optimal” intake of 1mg per day. Did you know that Fluoride is able to mimic the action of TSH? Researcher Andreas Schuld has found that excess fluoride correlates with other thyroid-related issues such as iodine deficiency. When there is excess of fluoride in the body it can interfere with the function of the thyroid gland.

Oestrogen
Any oestrogen raises the levels although thyroid activity is unchanged. This could make your levels look within the normal range, whereas they are really below it. Oestrogen provides more of the transport protein, making the hormone inactive. After starting on any oestrogen therapy, a woman should always have TSH tested to see if the oestrogen is having an impact on overall TSH and thyroid function and might require a dosage adjustment.

Ask your doctor about taking any vitamin supplements.
hypothyroidism tends to affect the absorption of necessary vitamis and minerals, so you need to keep a check on your balance. But many supplements have iodine. Always check with your GP or Chemist.

Re: Thyroid Groups
 

Did you know by the way, that there is fluoride in tea?

Re: Thyroid Groups
 

People with hypothyroidism are also more at risk from diabetes, glaucoma & pernicious anaemia.

Undetected it  can lead to severe "women's problems" which lead to hysterectomy, as in my case. Would seem mine had been underactive to some extent for several years. Only when the conditon became extremely severe, was any notice taken.

Re: Thyroid Groups
 

thanks cazzer. i eat everything u put down never new so many things you cannot eat .you r right should be more imfomation maybe we all should start a group up?
:D ::) 8)

Re: Thyroid Groups
 

I would be interested in a Thyroid group as I had most of my Thyroid removed and haven't been right since. :P

Re: Thyroid Groups
 

What we need is someone with organisational skills to get one going.

How long since, lottie?
How much meds?

Get much support from your doctor?

I think I'll  check out the BTF site and see if I can contact anyone who has set one of these up, actually.

Re: Thyroid Groups
 

just going to my doctors to see if they can tell me of any groups.And ask why give tablets with no imfo about what to eat and what not to

Re: Thyroid Groups
 

docter said eat anything ?

Re: Thyroid Groups
 

The information I put in comes from Doctors too!!

Suggest you do a search on the net and read through all sites that discuss underactive thyroid or hypothyroidism (not hyperthyroidism) (The ones by doctors).

Your GP most probably isn't specialised, most of the docs that write these articles are.
Also try finding a book in the library on thyroid problems.

Note that I said about certain foods being BEST AVOIDED. (Which I have now emphasised in capitals.)

It's up to you what you do. All I know is that since I have been following certain ideas, I have felt a whole lot better, all though still far from 100%.

the fact that people aren't 100% after diagnosis and being stabilised on medication seems to me to speak for itself

There is also an ongoing debate about thyroid tests and levels at the mo. If you are within a certain range you are deemed OK.

But a lot of sources are not happy with this.

Still boils down to lack of info doesn't it?

Re: Thyroid Groups
 

YOU ARE RIGHT when asked about the food intake THEY THE NURSESS SAID ONLY WHAT WAS IN THE NIMBS BOOK DOES NOT GIVE ANY DETAILS OF FOODS ?

Re: Thyroid Groups
 

Not sure what you mean there Tommy. Which nurses and what's the Nimbs book?

Re: Thyroid Groups
 

peelhouse medical book

Re: Thyroid Groups
 

So what is in the NIMBS book? Is this a nurses handbook?

All I can say to you Tommey is get all the information you can, from whatever source you can.

Look up every reference you can find on the Net that is written by a thyroid specialist. Read every book you can find in the library about hypothyroidism, written by a thyroid specialist.

Make some educated choices!

The fact that Doctors will argue between themselves over this matter says enough for me.

Re: Thyroid Groups
 

you r right will look up web see what i can find ;D