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garinda 03-10-2006 15:50

Parkinson's Disease.
 
I feel like I've been banging on about it too much of late, but I've had a few pm's from people who are indirectly affected by Parkinson's Disease, which I've answered to the best of my ability. For anyone else who may need information or advice, the Michael J. Fox site gives a lot of answers in a clear and easy to understand way.

http://www.michaeljfox.org/help/index.php

I'll shut up now.:D

garinda 03-10-2006 15:51

Re: Parkinson's Disease.
 
If this isn't the place for the link please feel free to move it somewhere more suitable.:)

WillowTheWhisp 03-10-2006 15:54

Re: Parkinson's Disease.
 
Quote:

Originally Posted by garinda
I'll shut up now.:D


That'll be a first. >>>>>>>>>>> runs for cover.:D

SPUGGIE J 03-10-2006 16:19

Re: Parkinson's Disease.
 
Its something that affects a lot more people than we think and therefore can be discussed without any problem in my view. No need to move it.

Less 03-10-2006 16:44

Re: Parkinson's Disease.
 
There can't be any harm in you discussing it, far better than you suffer alone, from what I remember of these posts you've always had encouragement and not 'for gods sake shut up', so why not talk about it? (there are probably some not so gobby as you, but, also suffering, that get their spirit's lifted from you talking about it) :D

garinda 03-10-2006 18:41

Re: Parkinson's Disease.
 
Quote:

Originally Posted by Less
There can't be any harm in you discussing it, far better than you suffer alone, from what I remember of these posts you've always had encouragement and not 'for gods sake shut up', so why not talk about it? (there are probably some not so gobby as you, but, also suffering, that get their spirit's lifted from you talking about it) :D


I've never had anything but support (and some cracking jokes) from everyone concerned with Accy Web, for which I'll be eternally grateful. In fact I was singing your lots praises to the man I went to talk to yesterday who has PD.

I wasn't appologising, it just seems that I've talked about it a lot recently, and I don't want to be a one trick pony...unless I can have a feathered head-dress and prance about in a circus tent.:D

Less 03-10-2006 19:15

Re: Parkinson's Disease.
 
Quote:

Originally Posted by garinda
I've never had anything but support

Go for it Dr. Rindy, I'll set you a temporary surgery up in the broom cupboard of the Calm Room, just remember though when you tell your patients to go behind the screen and strip off,

You ain't Supposed to join them!
:rolleyes:

Gayle 03-10-2006 20:13

Re: Parkinson's Disease.
 
I certainly don't mind you mentioning something which is a very important part of who you are.

I read Michael J Fox's book a couple of years ago and I was very moved by it. He, like you, appears to have coped with amazing strength and perspective.

garinda 03-10-2006 23:16

Re: Parkinson's Disease.
 
Quote:

Originally Posted by Less
Go for it Dr. Rindy, I'll set you a temporary surgery up in the broom cupboard of the Calm Room, just remember though when you tell your patients to go behind the screen and strip off,


You ain't Supposed to join them!
:rolleyes:


As I told you by pm, I don't mind being the face of a disease...just as long as it isn't venereal.:D

Madhatter 04-10-2006 00:17

Re: Parkinson's Disease.
 
Thanks rindy you're a star, I understand it a lot more now. I now understand the stem cell research stuff more too.

garinda 04-10-2006 00:23

Re: Parkinson's Disease.
 
Quote:

Originally Posted by Madhatter
Thanks rindy you're a star, I understand it a lot more now. I now understand the stem cell research stuff more too.

Thanks. I'll take the compliment...before you read the post were I was a bit rude to you earlier, re:Poppy.:D

Madhatter 04-10-2006 04:11

Re: Parkinson's Disease.
 
The compliment stands no matter what you say in the other thread. Just cos You dissagree with me doesn't make you a bad rindy. If you want spanking ask chav. :D

jimmi5bellies 05-10-2006 08:59

Re: Parkinson's Disease.
 
Quote:

Originally Posted by Less
There can't be any harm in you discussing it, far better than you suffer alone, from what I remember of these posts you've always had encouragement and not 'for gods sake shut up', so why not talk about it? (there are probably some not so gobby as you, but, also suffering, that get their spirit's lifted from you talking about it) :D


Yeaaaaaa ill second that. :D

garinda 07-10-2006 10:34

Re: Parkinson's Disease.
 
Interestingly I've just found out from Wikipedia, that fellow sufferers include Hitler, Terry Thomas, and Salvador Dali.

Autocratic, an artistic bent, and a desire to be funny.

I think I can see a pattern here.:D

http://en.wikipedia.org/wiki/Parkinson's_disease

chav1 07-10-2006 13:53

Re: Parkinson's Disease.
 
hitler had parkingsons ?

so it is totaly fesable that he only wrote an order to kill 1 jew but the parkingsons made him add on a few extra zeros when his pen shook :eek:

Doug 07-10-2006 14:17

Re: Parkinson's Disease.
 
I’ve seen this post over the past week or two; I don’t understand that it should be an issue. Parkinson’s disease is a isolating and debilitating illness, if this post helps others or educates people of its affects then more the better.

garinda 07-10-2006 14:22

Re: Parkinson's Disease.
 
Quote:

Originally Posted by Doug
I’ve seen this post over the past week or two; I don’t understand that it should be an issue. Parkinson’s disease is a isolating and debilitating illness, if this post helps others or educates people of its affects then more the better.

It isn't an issue. It was just me being a bit hyper-sensitive about it being in the general section. I did have a few pm's asking for information, by people who had family members who were affected. Hence the thread and the links. If it is at all helpful to anyone else I'm glad.

(Plus you can now all see that my movements are slow because of PD, so I think should get a handicapped start in Accymel's timed quizes.:D)

Doug 07-10-2006 14:25

Re: Parkinson's Disease.
 
Quote:

Originally Posted by garinda
It isn't an issue. It was just me being a bit hyper-sensitive about it being in the general section. I did have a few pm's asking for information, by people who had family members who were affected. Hence the thread and the links. If it is at all helpful to anyone else I'm glad.

(Plus you can now all see that my movements are slow because of PD, so I think should get a handicapped start in Accymel's timed quizes.:D)

Nothing new then......

accymel 07-10-2006 16:51

Re: Parkinson's Disease.
 
Quote:

Originally Posted by garinda
(Plus you can now all see that my movements are slow because of PD, so I think should get a handicapped start in Accymel's timed quizes.:D)

Hey dont start that off pmsl or else i will be getting some very strange handiap excuses off all people ....& some with very new ones indeed.... l:eek::D :Banane37:

garinda 07-10-2006 17:10

Re: Parkinson's Disease.
 
Quote:

Originally Posted by accymel
Hey dont start that off pmsl or else i will be getting some very strange handiap excuses off all people ....& some with very new ones indeed.... l:eek::D :Banane37:

Worth a try...though I don't need it today.:D

Gayle 07-10-2006 17:34

Re: Parkinson's Disease.
 
Sorry I was in the wrong thread.

shillelagh 08-10-2006 22:20

Re: Parkinson's Disease.
 
I've just watched ITV What we did on holiday. Will someone tell me what happened? I watched it until they took him into the sea and couldnt watch anymore.

garinda 08-10-2006 22:29

Re: Parkinson's Disease.
 
Quote:

Originally Posted by shillelagh
I've just watched ITV What we did on holiday. Will someone tell me what happened? I watched it until they took him into the sea and couldnt watch anymore.

It just showed the father (Roger Lloyd Pack) floating away from his son (Shane Richie,) into the great blue yonder.

I think you were left to believe that he wanted to float off and die peacefully, without being too graphic.

It was good to see some new, well acted drama, on tv for a change.

WillowTheWhisp 09-10-2006 08:01

Re: Parkinson's Disease.
 
Quote:

Originally Posted by garinda

(Plus you can now all see that my movements are slow because of PD, so I think should get a handicapped start in Accymel's timed quizes.:D)

The speed you're going in the quizes I think the rest of us are the ones who need a head start!

West Ender 09-10-2006 14:40

Re: Parkinson's Disease.
 
Quote:

Originally Posted by garinda
It just showed the father (Roger Lloyd Pack) floating away from his son (Shane Richie,) into the great blue yonder.

I think you were left to believe that he wanted to float off and die peacefully, without being too graphic.

It was good to see some new, well acted drama, on tv for a change.



It was a brilliant play until the ending. I was enjoying seeing Malta and shouting out, "Hey, look, there's the Coastline. Ooh, look, that's that church on Gozo with all the crutches," etc. and the plot was great - BUT - What the hell was he going to tell his mother, after he floated his dad away? And wouldn't he immediately be arrested for murder? The story was very moving but the ending was too silly for little old practical me. :(

Shady McGough 11-10-2006 20:43

Re: Parkinson's Disease.
 
Quote:

Originally Posted by chav1
hitler had parkingsons ?

so it is totaly fesable that he only wrote an order to kill 1 jew but the parkingsons made him add on a few extra zeros when his pen shook :eek:

You totally insensitive jerk.

chav1 12-10-2006 11:42

Re: Parkinson's Disease.
 
Quote:

Originally Posted by Shady McGough
You totally insensitive jerk.

i think the jews are over it and have managed to get their numbers back up now judging by how many i have seen walking around manchester but thanx for showing your concern ;)

as for the person in this thread who has parkingsons ( garinda) he has heard a lot worse comments than what i put , granted they have been from me but he would rather laugh and joke about it rather than accept pity and certainly dosnt need people sticking up for as him he is quite capable of giving sh!t back himself ;)

garinda 12-10-2006 13:24

Re: Parkinson's Disease.
 
Quote:

Originally Posted by chav1
i think the jews are over it and have managed to get their numbers back up now judging by how many i have seen walking around manchester but thanx for showing your concern ;)

as for the person in this thread who has parkingsons ( garinda) he has heard a lot worse comments than what i put , granted they have been from me but he would rather laugh and joke about it rather than accept pity and certainly dosnt need people sticking up for as him he is quite capable of giving sh!t back himself ;)

Ok, rant over.

You can stop shaking now.:D

chav1 12-10-2006 17:10

Re: Parkinson's Disease.
 
Quote:

Originally Posted by garinda
Ok, rant over.

You can stop shaking now.:D

please refrain from taking teh mick out of yourself ,i find it offensive on both your behalf and that you dont trust me to do it propperly :)

garinda 23-10-2006 19:27

Re: Parkinson's Disease.
 
I just thought I'd share this clip of Michael J Fox, which was kindly sent to me by Steeljack. Thanks matey.

YouTube - Michael J. Fox

Billcat 23-10-2006 21:08

Re: Parkinson's Disease.
 
Quote:

Originally Posted by garinda
I feel like I've been banging on about it too much of late, but I've had a few pm's from people who are indirectly affected by Parkinson's Disease, which I've answered to the best of my ability. For anyone else who may need information or advice, the Michael J. Fox site gives a lot of answers in a clear and easy to understand way.

How to Help

I'll shut up now.:D

Thanks for the link, very informative! While Michael Fox has the means to deal with PD better than many folks, I have to admire the effort he has made (and, similarly, the efforts Christoper Reeve made on spinal cord injuries). These two had the reasons and the financial means to pack it in and be taken care of, but they dedicated their lives to searching for cures that may someday help millions.

garinda 24-10-2006 22:52

Re: Parkinson's Disease.
 
Again, thanks to Steeljack for this link as to how Micael J Fox's campaign for stem cell research is being received.

BREITBART.COM - Michael J. Fox Plunges Into Election

garinda 08-02-2007 15:42

Re: Parkinson's Disease.
 
Someone sent me this.

I thought at first I'd better start skinning up, but sadly that doesn't seem work.:D

http://news.bbc.co.uk/1/hi/health/6338173.stm

LancYorkYankee 08-02-2007 17:35

Re: Parkinson's Disease.
 
I just tried to do a search regarding Parkinson's Disease. I had heard on the radio the other day about some very intriguing research being done. It was either George Washington University Hospital or Georgetown Univeristy Hospital. Both of these are right up the road in Washington, DC. I believe it was a form of medication that could curtail the PD's tremors.

I guess there is alot of "hope" in all this research but not much has reached the common man as of yet eh? Or have you actually been helped by some of recent research advances?

I trust things are at least stable for you my friend!

Brian

garinda 08-02-2007 18:13

Re: Parkinson's Disease.
 
Thanks Brian.

Happily research is turning up new things, almost weekly it seems. I'm hopeful that in my life time there will be something akin to a cure for Parkinson's Disease.

When I was first diagnosed three years ago, I was on an experimental new drug, but the side affects of constant vomiting, meant the benefits were far out weighed by the side effects.

At the moment, because eventually all drugs presently available stop working after so long, surgery seems the most effective option in the future. The thought of an eighteen hour operation, were rods are inserted into your brain whilst you ar eawake, frightens the hell out of me. Hopefully with the constant advancement in drug therapies, myself and lots of other people, may never have to experience that.:)

WillowTheWhisp 08-02-2007 19:49

Re: Parkinson's Disease.
 
The idea of having rods inserted into your brain while you're awake would probably terrify me too. I can cope with anything being done to any other part of my body because I can sort of distance myself from it into my head but if t involved my head I wouldn't be able to do that - I even hate having my eyes fiddled with never mind my brain. I hope they do progress with research before it comes to that for you.

SPUGGIE J 08-02-2007 22:49

Re: Parkinson's Disease.
 
Science s moving forward fast enough to find a cure in the next 5-10 years.

garinda 08-02-2007 23:02

Re: Parkinson's Disease.
 
Quote:

Originally Posted by WillowTheWhisp (Post 380984)
The idea of having rods inserted into your brain while you're awake would probably terrify me too. I can cope with anything being done to any other part of my body because I can sort of distance myself from it into my head but if t involved my head I wouldn't be able to do that - I even hate having my eyes fiddled with never mind my brain. I hope they do progress with research before it comes to that for you.

Sounds horrible, but if it meant I could keep my independance I'd do it like a shot. Michael J. Fox had it done, but it's now affected the otherside of his body as well, so there is little they can do, although it did work for a while.

cashman 09-02-2007 00:05

Re: Parkinson's Disease.
 
thats a choice i sincerely hope you never have to make mate.

Billcat 09-02-2007 05:16

Re: Parkinson's Disease.
 
Let's hope that something better than that operation happens - and, for rindy's sake, soon!

Greetings from sunny San Pedro, California!

garinda 26-11-2008 16:11

Re: Parkinson's Disease.
 
Just on the off chance anyone here is affected by PD, or knows someone who is, I've started a Parkinson's Disease group on Facebook, mainly because there wasn't a U.K. based one.

I don't think a link to the page works, it just takes you to Facebook's sign in page, so if you put Parkinson's Disease in the search you'll easily see it.

Thanks.:)

andrewb 26-11-2008 16:17

Re: Parkinson's Disease.
 
Couldn't find the group easily through search (it only appears high if you're already a member). If you're logged into facebook it will work, its Parkinson's Disease. | Facebook

garinda 26-11-2008 16:25

Re: Parkinson's Disease.
 
Quote:

Originally Posted by andrewb (Post 655036)
Couldn't find the group easily through search (it only appears high if you're already a member). If you're logged into facebook it will work, its Parkinson's Disease. | Facebook

Thanks Andrew.:)

MargaretR 26-11-2008 17:07

Re: Parkinson's Disease.
 
In my recent extensive websearching about vitamin deficiencies I came across this link that may be helpful-

National Parkinson Foundation - Parkinson, B6, B12, and Folate - What's the Connec
"Some health professionals are beginning to suspect that these three vitamins may be significant factors in Parkinson's disease."

grannyclaret 27-11-2008 12:47

Re: Parkinson's Disease.
 
I hope you get some positive help soon Rindy ,that operation sounds horrendous

magpie 29-11-2008 18:02

Re: Parkinson's Disease.
 
My ex father in-law had this illness: sadly he is no longer with us: however I have some books on the subject and if anyone wants them: pm : you can have the books for free, just stick some money in the PD collection box should you see one:

garinda 29-11-2008 20:51

Re: Parkinson's Disease.
 
Quote:

Originally Posted by magpie (Post 655927)
My ex father in-law had this illness: sadly he is no longer with us: however I have some books on the subject and if anyone wants them: pm : you can have the books for free, just stick some money in the PD collection box should you see one:

That's really kind of you. I hope if someone needs any information they'll take you up on the offer.

Knowledge is power.

I'm buzzing myself, as today I went to a conference in Liverpool for younger people with P.D. Having only ever met one other young onset PD person before today, it was so empowering to be with hundreds of other people in the same boat as myself, and I've hopefully made some useful contacts/friends.

I was even allowed up on the stage when the conference was closing to address the people there, and tell them about the new group on Facebook.:)

magpie 29-11-2008 21:04

Re: Parkinson's Disease.
 
To be honest when Dad had the illness he was in his mid 70's: to cut a long story very short.... we did not have a clue about this illness and just how debilitating it can be in the final stages: one min he was ok the next really bad, because of our then ignorance we even thought at times he was playing on it ( and so did the so called professionals) My advice for anyone with the illness ( if possible) and especially those people that are caring for them.... read all you can: I am also more than happy to be a sounding board if anyone needs it: We looked after Dad for many years at home, until in the end he had to go into hospital: The offer is there is anyone at any stage needs it:


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