[den the menace]

thanks everybody,
ive managed this far without a carer, and ive been "lucky" that the muscle wasting has been very slow to progress. imho you have 2 choices when you get hit with these conditions, one is to let the condition rule your life, the other is to just get on with it and get as much done for as long as u r able. i know that isnt an option for some people sadly, these various illness can be absolutely devastating, thats why i consider myself lucky. good luck to you all.