Quote:
Originally Posted by Guinness
Shillelagh, as an sufferer of this condition, you obviously know the diffence between a seizure and a fit, you should be educating people NOT belittling the difference (and i'm guessing you are tonic/clonic)
Bernadette..I have no doubt you are speaking the truth, mistakes happen,but, the main causes of death in epilepsy are SUDEP and Status Eplepticus..
SUDEP (sudden death in epilepsy), still being researched. the jury is still out, BUT (without going too deep) early research states if someone is around it can be avoided.
STATUS..usually consultants recognise who is likely to go into Status and medicate accordingly (rectal diazepam etc..)
Gayle..What to do if someone has an epileptic seizure?....NOTHING!!!!..except make them comfortable, ensure their safety, reassure, and stay with them.
You know I've read this article....I can't actually find what kind of epilepsy (out of the thouands of variations) the dancer suffers from?
For the rest of you................You do realise that 'deja vu' can be classed as a mild epileptic seizure, as can that feeling of falling just as you wake up  |
Guinness as far as i know the 'old' word for what happens to me is a 'fit' which is what my doctor when i was a child, my mum, all the neurologists ive had called it ... but in the 90's when everything was getting PC etc .. they changed the name to 'seizure' and got rid of the name grand mal and petit mal and changed to tonic clonic, partial - simple or complex ... to make it more acceptable to people. As people still had the impression a 'fit' meant falling down, foaming at the mouth, wetting themselves, arms flailing around etc .. not staring off into space for a couple of minutes or a few jerks etc .. That was why they brought in the change of name - plus all the research was going on and they were finding different fits so it seemed easier.
Me being me, brought up by a mother who had brother die due to an epileptic fit in a pond in the 1930's, who had a son who grew out of it and then had me .. who grew out of it and then returned .. still uses the old terms .. and even the neurologists ive seen still use the old terms .. and if you've read any of my posts or my blogs re my epilepsy then you would see i dont belittle it .. and as far as i know .. a lot of people who have come into contact with me who hadnt before had any contact with someone with epilepsy they know a bit more about it after they leave and what to do if i do have one ... in fact not long ago i was on accy market and had one by the side of lancsdave then market stall, another i was on the phone to an accywebber - he rang for an ambulance seeing as he wasnt anywhere near and kindly gave them permission to kick my door in .. but did actually tell them to try the back door ...which luckily was open .. but this is it .. i have epilepsy .. but i do my best not to let it get me down .. because if i did i would probably have more .. and i dont want more .. if you want to meet face to face .. i will .. im happy to do so.