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-   -   Local mum needs bone marrow transplant. (https://www.accringtonweb.com/forum/f69/local-mum-needs-bone-marrow-transplant-45753.html)

garinda 21-02-2009 15:46

Local mum needs bone marrow transplant.
 
I was given a flyer this afternoon whilst shopping in Accy, by the family of a local young woman, who's a wife, and also a mum.

She has acute leukaemia, but unfortunately it seems she has a very rare bone marrow type, meaning the chances of finding a match for a transplant are quite slim, and there isn't anyone currently on the bone marrow register who is the same type.

They are having a recruitment clinic at Hyndburn Fire Station, Hyndburn Road, Accrington BB5 4ED, on Thursday 26th Febuary, 2009. 4pm-8pm.

There is more details on their website.

you could save her life !

It seems a very worthy cause to try and help advertise, and I wish them all the very best, and hope they eventually find a match, and that her lovely kids grew up knowing their mum for a very long time to come.

derekgas 21-02-2009 16:11

Re: Local mum needs bone marrow transplant.
 
I have downloaded the questionnaire, and will furnish my staff with one for thier perusal, i will also allow any member of staff the time to attend at Hyndburn firestation without loss of earnings if they wish to attend, I personally will attend regardless, I hope to see some of you there.

emzy 21-02-2009 16:16

Re: Local mum needs bone marrow transplant.
 
I would help but know am no longer allowed to donate blood so would think the same would go for bone marrow or anything else like that :(

garinda 21-02-2009 16:29

Re: Local mum needs bone marrow transplant.
 
Quote:

Originally Posted by derekgas (Post 683585)
I have downloaded the questionnaire, and will furnish my staff with one for thier perusal, i will also allow any member of staff the time to attend at Hyndburn firestation without loss of earnings if they wish to attend, I personally will attend regardless, I hope to see some of you there.

I was about to say no thanks to the flyer, thinking it was someone trying to flog me something at first.

I felt quite ashamed when I'd read it, and realised that her friends and family weren't trying to sell something, but to help this woman, and by doing so hopefully others awaiting a match for a transplant.

Margaret Pilkington 21-02-2009 16:36

Re: Local mum needs bone marrow transplant.
 
My age precludes me from becoming a bone marrow donor......but I do hope that she finds a match very soon.

flashy 21-02-2009 16:37

Re: Local mum needs bone marrow transplant.
 
Bone marrow donation: What to expect when you donate - MayoClinic.com

BERNADETTE 21-02-2009 16:38

Re: Local mum needs bone marrow transplant.
 
Does your blood group not come into it?

turkishdelight 21-02-2009 16:49

Re: Local mum needs bone marrow transplant.
 
Quote:

Originally Posted by garinda (Post 683572)
I was given a flyer this afternoon whilst shopping in Accy, by the family of a local young woman, who's a wife, and also a mum.

She has acute leukaemia, but unfortunately it seems she has a very rare bone marrow type, meaning the chances of finding a match for a transplant are quite slim, and there isn't anyone currently on the bone marrow register who is the same type.

They are having a recruitment clinic at Hyndburn Fire Station, Hyndburn Road, Accrington BB5 4ED, on Thursday 26th Febuary, 2009. 4pm-8pm.

There is more details on their website.

you could save her life !

It seems a very worthy cause to try and help advertise, and I wish them all the very best, and hope they eventually find a match, and that her lovely kids grew up knowing their mum for a very long time to come.

This is a really a sad situation my heart goes out to the lady and her family i will be attending on Thursday. Thanks for informing people.

K.S.H 21-02-2009 16:56

Re: Local mum needs bone marrow transplant.
 
I got a leaflet handed to me by a fireman up at Stanley, they also mentioned it over the tannoy, I would go along with something like this but they said you had to be between 18 and 40 - WHY?
Can you not donate marrow after you are 40 :confused:

BERNADETTE 21-02-2009 17:07

Re: Local mum needs bone marrow transplant.
 
Oh well if you have to be under forty that rules me out. Would have been more than willing to be tested. Hope they find a match.

garinda 21-02-2009 17:16

Re: Local mum needs bone marrow transplant.
 
Quote:

Originally Posted by K.S.H (Post 683610)
I got a leaflet handed to me by a fireman up at Stanley, they also mentioned it over the tannoy, I would go along with something like this but they said you had to be between 18 and 40 - WHY?
Can you not donate marrow after you are 40 :confused:

In America the upper age limit for donors appears to be sixty, but it does give this information...

'The upper age limit is based on donor and patient considerations. There is a small increase in the risk of side effects from anesthesia in older donors.'


Medical Guidelines for Joining the Registry - NMDP donor health guidelines

turkishdelight 21-02-2009 17:18

Re: Local mum needs bone marrow transplant.
 
Same here would have been willing to be tested just learnt that you have to be under 40 that also rules me out.

katex 21-02-2009 17:25

Re: Local mum needs bone marrow transplant.
 
Quote:

Originally Posted by Margaret Pilkington (Post 683594)
My age precludes me from becoming a bone marrow donor......but I do hope that she finds a match very soon.

Me and you both Margaret. Blood donation was always something I intended to do .. was "always the next time" for me ... one thing I have always regretted. After all just a little of your time and you wouldn't miss it, as in the bone marrow donation ... best of luck to this lovely mum. x

Ossywarrior 21-02-2009 19:47

Re: Local mum needs bone marrow transplant.
 
ill bob down thursday and ill bring the wife as she has an extremly rare blood type as well

garinda 22-02-2009 00:14

Re: Local mum needs bone marrow transplant.
 
Quote:

Originally Posted by Ossywarrior (Post 683663)
ill bob down thursday and ill bring the wife as she has an extremly rare blood type as well

That's great, of you and others.

The more people who register the greater the chances of finding matches for this young woman, and others.

It's amazing that something that was more or less terminal only a few years ago, can now be almost completely cured thanks to the advances made in bone marow transplants.

jaysay 22-02-2009 09:26

Re: Local mum needs bone marrow transplant.
 
I tried to become a blood donor many years ago, but because of my medical condition and the medication I was on stopped me

derekgas 22-02-2009 09:34

Re: Local mum needs bone marrow transplant.
 
I am over 40, still going though, as Im sure they will point me in the right direction if I am no use to them!

harwood red 23-02-2009 16:33

Re: Local mum needs bone marrow transplant.
 
I also got the flier at Stanley by the nice firemen.. I could go along just to see them :D but alas I am already on the bone marrow register!! :rolleyes:

emzy 23-02-2009 16:39

Re: Local mum needs bone marrow transplant.
 
It says in the link that if you are between 40 and 49 to contact the NHS regarding giving blood etc so it would seem that you can give blood up to the age of 49 but not sure why youve to go through them. Im sure I have a very common blood group but cannot help by donating blood etc which is annoying as its something I always wanted to do

shillelagh 23-02-2009 16:59

Re: Local mum needs bone marrow transplant.
 
Im not allowed to donate blood either emzy ... due to all the medication im on. I went to donate once when i worked down at the bus shed in rawtenstall and they refused me ... My sister had donated twice a year since she started work .. and she received different badges when she hit 50 pints and 100 pints .

flashy 23-02-2009 16:59

Re: Local mum needs bone marrow transplant.
 
you can give blood long after you are 49, my uncle Bri is 61 and he STILL gives it, he gets a badge every so often for the amount of pints he has given over the years

flashy 23-02-2009 17:00

Re: Local mum needs bone marrow transplant.
 
lol jinx Jen

flashy 23-02-2009 17:00

Re: Local mum needs bone marrow transplant.
 
i'm on prozac, its extremely doubtful that i'd be able to give any

katex 23-02-2009 17:11

Re: Local mum needs bone marrow transplant.
 
Quote:

Originally Posted by flashy (Post 684367)
you can give blood long after you are 49, my uncle Bri is 61 and he STILL gives it, he gets a badge every so often for the amount of pints he has given over the years

They raised the age limit too in December Flashy to beyond 70, as per this link, but pretty sure you had to be registered already before age 60 (?) .. can't remember exactly, know when I heard it I wouldn't be able to.

BBC NEWS | Health | Blood donor age limit is scrapped

Started to note a few posters about town re. this lady now... quite a big one at the Dill Hall Lights.

flashy 23-02-2009 17:14

Re: Local mum needs bone marrow transplant.
 
he's been giving blood since he was in his 20's Kate

Boeing Guy 24-02-2009 12:43

Re: Local mum needs bone marrow transplant.
 
Well I hope she gets a match, I am already on the register so I must not be a match.

I am a regular Blood Donor, almost up to 25, would have been over that by now but for the fact I get to travel to nice places like the Congo, stops you donating for 6 months.

I hope this appeal encourages more people to give blood, it really is life saving.

katex 02-11-2010 11:34

Re: Local mum needs bone marrow transplant.
 
Just a little bump up here.

My daughter works with a 35 year old doctor, whose only option now is a marrow transplant and an extremely urgent situation.

The problem is she is O RH POSITIVE. If someone has this blood group, please consider donating. x

Greeny 02-11-2010 11:46

Re: Local mum needs bone marrow transplant.
 
O resus positive is the most common blood group.

katex 02-11-2010 15:11

Re: Local mum needs bone marrow transplant.
 
Yes, sorry .. wasn't quite clear. The most common blood groups are the ones most needed due to the fact most people with these groups will be drawing off the banks. It's for bone marrow transplant, not blood transfusions .. harder to match, but the blood group is the first hurdle.

A suitable match has not been found and the extra problem is that she is of Afro-Caribbean heritage, and seemingly caucasian bone marrow very rarely matches blacks. I think purely due to the fact that ethnic groups are not easily persuaded to donate, and they are likely to have more rare genetic make-ups because their genes are more racially mixed.

Just trying to get people to donate generally is a good starter.

Margaret Pilkington 02-11-2010 16:39

Re: Local mum needs bone marrow transplant.
 
Kate, you are right...blood grouping is the first step then i Think they do HLA testing to get a match. You are right about the lack of donors from ethnic backgrounds too......though I do not know why they don't come forward to donate.

Margaret Pilkington 02-11-2010 16:41

Re: Local mum needs bone marrow transplant.
 
By the way HLA stands for Human Leucoctye Antigen.

katex 06-11-2010 19:22

Re: Local mum needs bone marrow transplant.
 
Just a bump here to remind people that may just say "Well, I donate blood anyway" .. it is not for the bone marrow donation. When you go for your next donation, tell them that you wish to have a test for bone marrow too, as unlikely they will ask you .. which would be a good idea if they did !!

C'mon everyone ... shake your arse and get moving ... only about a year to find a good match .. and more the merrier. x


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