Parkinson's Disease Society new local group
 

There is a new local Parkinson's Disease Society branch, which is for Hyndburn and the Ribble Valley, and which will also cover Rossendale.

Today saw the second meeting of a new local branch at Accrington Town Hall. It was attended by over thirty people, who enjoyed a Jacob's Join lunch.

This new branch will be headed by Lancashire County Councillor Wendy Dwyer, who stands down from that job in the summer. She'll be supported by a committee, including your's truly.

We are meeting at my house in the next couple of weeks to discuss the next meeting, which will probably be in March.

Anyone who has Parkinson's, or whose life is touched by it, by having a family member, partner etc. who has P.D., will be very welcome to come along.

There will be a social element to these meetings, but hopefully also speakers who can give advice about living with the disease etc. The national Parkinson's Disease Society is fully behing the new group, and sent two employees to today's meeting in Accrington.

I'll post further details of the next meeting as soon as a date as been set.

Thank you.:)

Re: Parkinson's Disease Society new local group
 

Good news that Gary and good luck with the new group.

Re: Parkinson's Disease Society new local group
 

Good luck with the new group, excellent idea:)

Re: Parkinson's Disease Society new local group
 

Hope it goes well G.

Re: Parkinson's Disease Society new local group
 

Good luck with the group, it sounds a really good idea

Re: Parkinson's Disease Society new local group
 

Best wishes for the Group. Parkinsons is certainly a disease which is not widely understood, either by the Public or indeed many Health Professionals. My Father passed away last year, after suffering from Parkinsons for many years. It was awful, the suffering he endured, particularily towards the end. Much more information should be in the public domain about this dreadfull illness.


Best Regards - Taggy

Re: Parkinson's Disease Society new local group
 

Good luck with the group.....

Re: Parkinson's Disease Society new local group
 

how fantastic we hope it continues to run for a long time to come with you involved were sure it will, nearer to the next meet i will pm you and get more details good luck well be thinking of you

Re: Parkinson's Disease Society new local group
 

That's great Garinda ... a lovely opportunity to compare 'notes' with other sufferers and to encourage research into new developments for this complicated condition. :alright:

Re: Parkinson's Disease Society new local group
 

Its a great idea, my grandad passed away after suffering from parkinsons for many years without much support for his condition........good luck with this, its certainly worthwhile.

Re: Parkinson's Disease Society new local group
 

Thanks for your support.:)

There is obviously a need for a local group.

Over thirty people for the second meeting, with very little publicity, was very encouraging.

The Burnley group has been going for over twenty years, and they attract similar numbers.

Re: Parkinson's Disease Society new local group
 

This type of group are really an essential part of communicating with people who suffer or have been touched by the disorder, I had similar results when I formed the Hyndburn Branch of the National Asthma Campaign (now Asthma UK) there were over 50 at the first meeting and we regularly had 30+ at subsequent meetings too. Hope your group has continuing success Rindi

Re: Parkinson's Disease Society new local group
 

only just seen this due to being away, think this group will certainly be a good help to many sufferers, good luck its certainly a great idea and needed, even with you on the committee.;)

Re: Parkinson's Disease Society new local group
 

The only two branches of the Parkinson's Disease Society in this part of the world, are in Bolton and Burnley, both of which meet in the evenings.

By having a daytime group based in Accrington, which is fairly easily accessible from most parts of Hyndburn and the Ribble Valley, hopefully we'll be able to fulfil a need for people who need a point of contact or support in this area. Judging by the numbers who've attended so far, with very little publicity, there is obviously a need for a local group.

The committee meet next Tuesday, and I'll post the date of the next meeting as soon as it's set.

Re: Parkinson's Disease Society new local group
 

The next meeting for the Hyndburn and Ribble Valley Parkinson's Disease Society will be on Saturday 7th March, at 11.30 am.

Subsequent meetings will be held on the first Saturday of every other month, starting with the meeting on the 7th March. The following meetings will be on the 2nd May, 4th July, 5th September and then 7th November, and so on.

It will be held in the Supper Room at Accrington Town Hall. The room is on the first floor, but there is lift access.

There will be a Jacob's Join lunch, so any food you'd care to share would be much appreciated.

At the first meeting there will be an informal speaker, who'll be an officer employed by the national P.D.S. Future speakers to be announced at a later date.

The aim of the group is to be an informal social and support group for anyone whose life has been touched by Parkinson's.

A warm welcome will be extended to anyone who'd like to attend.

I'm going to be unoffical meeter and greeter at the meetings, and more offically press and publicity officer.

:)

Re: Parkinson's Disease Society new local group
 

Good luck again... and let me know if I can help in any way: Yes I would say there is a great need for a support group, I personally don't have time to attened all meetings and so on: however I am more than happy to help in other ways.... I have books and so on, and maybe I could do some kind of fact sheet or something. pm me:

Re: Parkinson's Disease Society new local group
 

Thank you.:)

Hopefully the Observer are doing an article about Wendy Dwyer retiring as a County Councillor, and her helping to start this new group for Hyndburn and the Ribble Valley.

Re: Parkinson's Disease Society new local group
 

I'd like to thank Taggy and Magpie for the kind book donation.

Hopefully this could be the start of a small lending library, where people can borrow books and hopefully glean useful information.

I know when I was first diagnosed I knew very little about Parkinson's, and was only given a small leaflet, which was quite brutal in it's style, and left me more in the dark than ever.

Knowledge is power, and I'll try to make sure as many people as possible have access to that knowledge.

Thanks ever so much...and it was great to meet you both too.:)

Re: Parkinson's Disease Society new local group
 

Your most welcome Garinda, it was lovely to meet you too. I dont know if you've read todays Telegraph or not, i've just looked at it now as i've got in the house, and theres a large article about a Clinical Research Study on Page 23, for which they are now enrolling. This looks very interesting, it says participants will receive:

Monitoring of their health as it relates to the clinical study

Ongoing study-related medical care by Parkinson's disease medical staff.

Investigational medication at no cost.

There are certain criteria to qualify, which are mentioned in the article, and this and more info is available at:-
Parkinson's Disease Study

Might be well worth a look!

Best Regards - Taggy

Re: Parkinson's Disease Society new local group
 

Cheers I'll cheack it out.

I spent part of last week taking part in a research programme for Dr.Leroi, to see how Parkinson's may make some people obsessive, and prone to gambling.

Happily I've no desire to start online gambling, and as for being obsessive?

Never.:D

Re: Parkinson's Disease Society new local group
 

....My Dad did start to take part in a lot of these TV Phone in competitions!! Lol! Take Care.

Best Regards - Taggy

Re: Parkinson's Disease Society new local group
 

Just a reminder to those members of Accy Web who've told me they are coming, or bringing someone, that the next meeting of the Hyndburn and Ribble Valley P.D.S. is tomorrow, Saturday 7th March, 11.30 am - 1.30 pm. in the Supper Room (1st floor but lift access) at Accrington Town Hall, and there'll be an informal Jacob's Join lunch.

I look forward to seeing you tomorrow.:)

Re: Parkinson's Disease Society new local group
 

On behalf of the Hyndburn and Ribble Valley Parkinson's Disease Group I'd like to thank Hyndburn Borough Council, who have very kindly granted us £250.00 to help with the start up costs involved with running this support group for anyone who's been touched by Parkinson's.

Until we are able to raise more of our own funds this will enable us to run the group and not charge people for attending, which I feel is very important, as many people are living on a tight budget because of the illness. It also means we'll be able to let more people know we are there if they need any help or support from the PDS.

My personal thanks to Cllr. Britcliffe, who alerted me to the fact that some help may be available if I applied to the council.

The next full meeting is on Saturday 2nd May, in the Supper Room, Accrington Town Hall, 11.30am - 1.30pm. There is wheelchair access via the lift.

For anyone who might be in the Ribble Valley there's also a meet and greet at the Rose & Crown, Castle Street, Clitheroe, on April 22nd, 7 - 9pm.

A warm welcome will be extended to everyone at both events.

Re: Parkinson's Disease Society new local group
 

Nice to hear about a plus for HBC for a change instead of the usual negative aspects. Hope your group is very successful Rindi, it does help if there is a certain amount of support within the local community, I always worked on the premise that a problem shared is a problem halved, it does help to talk to other people especially where health problems are concerned

Re: Parkinson's Disease Society new local group
 

Apparently it's Parkinsons Awareness week next. There's an article in the Telegraph which makes you realise how you never know whats round the corner.

Good article G :)

Former high-flyer, 44, tells of Parkinson's disease battle (From Lancashire Telegraph)

Re: Parkinson's Disease Society new local group
 

Wowee .... :mosher: Good promotion for your group, and a small insight into your thoughts and courageous attitude to your condition .. love ya' to bits x

Re: Parkinson's Disease Society new local group
 

The national Parkinson's Disease Society were looking for a few differing people to talk about their lives, so I volunteered, and have done a few interviews recently.

Camilla Sutcliffe, the health editor at the Lancashire Telegraph, was kind enough to let me mention the group, in exchange for me prattling on about my life, as part of an article she wrote for Parkinson's awareness week, which starts next Monday.

Apparently there'll be a photograph to go with the article in the paper. There's one the photographer took of me looking wistfully out of a window, and another of me hanging from a branch, in which I look Oriental, and not unlike a Sumo wrestler.

I hope they chose wistful, rather than me hanging from a tree.:eek::D

Re: Parkinson's Disease Society new local group
 

Great write up G well done you for speaking so frankly about things:)

Re: Parkinson's Disease Society new local group
 

Thank you.

The headline's a bit cringe making, and not how I'd describe myself.

She did a good job of making sense of me rambling on. Perhaps I did say about the wheelchair, but that's not what I meant.

I was trying to stress the positive, and that I don't dwell on the future possibilities that may arise, and instead hope the medical research comes up with a cure, not only for PD but for other degenerative illnesses too.

Re: Parkinson's Disease Society new local group
 

when we talked about this earlier gary you mentioned they took a few pictures of you in various poses and said how you hoped they wouldnt use the one of you looking like you were hanging off a tree

sorry mate but the picture got leaked :D

http://img5.travelblog.org/Photos/48...angatang-0.jpg

Re: Parkinson's Disease Society new local group
 

I wish I looked that thin in my tree swinging photos.:D

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well it seems your well hung so you cant complain too much :D

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The article in the Lancashire Telegraph was seen by someone at Granada Reports, who'd like to film an interview with me next week, as part of Parkinson's awareness week.

So hopefully I'll be able to gain more publicity for the group here in Hyndburn, and let people know there is support out there if they need it.

Re: Parkinson's Disease Society new local group
 

You will have to remind us about this and let us know what night the interview will be aired. Don't want to miss this one:)

Re: Parkinson's Disease Society new local group
 

Good article Gary......and the photo is just fine.
I shall look forward to seeing you on TV......as long as you don't sing 'My Way':D

Re: Parkinson's Disease Society new local group
 

Great article.

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Garinda, I had no idea, being new to the forum. (Well fairly new) I've been ill myself these last 2 months but if there's anything we can do, give us a shout. My father in law had Parkinsons. Good luck with what you are doing. Best wishes. xxxxxxxxxx

Re: Parkinson's Disease Society new local group
 

last December someone I knew died from Parkinsons..I always knew it was bad but never came across as something fatal.

Re: Parkinson's Disease Society new local group
 

Great article, Garinda. :)

Best of luck with what you are doing.

Re: Parkinson's Disease Society new local group
 

Presume you heard the discussion on Radio 2. Jeremy Vine today Garinda with Jane Asher (president of the Parkinson's Society) on brain donation ? Have just listened on catch up ... as knew was scheduled.

About brain donation ... only have about 1,000 at the moment. Need these donations to compare people who have suffered with it and those who haven't to discover what happens to the cells. Can speed up a cure tremendously.

'Course one or two members on here need not apply .. grey matter gone already ... :D:D ....


Only joking.

This is the article link the BBC have put up against the programme:-

BBC NEWS | Health | Parkinson's plea for brain donors

Re: Parkinson's Disease Society new local group
 

I heard Jane Asher talking about it on the Jeremy Vine show too.

This week is Parkinson's awareness week, and this being the 40th anniversary of the founding of the Parkinson's Disease Society, they are having a real push to see if they can increase the number of donated brains, which will help with research, not only for Parkinson's, but many other neurological diseases as well.

Incidentally, the P.D.S. has raised over £40 million pounds for research since it's founding.

(You can see I've been reading up on all the facts from the media pack the P.D.S. sent me.):D

Re: Parkinson's Disease Society new local group
 

More information for anyone who'd like to know more about the possiblity of becoming a brain donor.

Parkinson's Disease Society - Request a Brain Donor Register information pack

Re: Parkinson's Disease Society new local group
 

I've just had a look.....I see it can only be done after death.....no popping along to the Globe centre once a month to have it done with complementary drink and biccie. :D

Re: Parkinson's Disease Society new local group
 

I have filled it in Garinda ... and just one remark from Cashy, Accyman, Neil, Jaysay, Mick and others (all men you notice) about the state of my grey matter.... will issue a red karma point .... :p

Think the problem is that lots of people think that your soul may be embedded in your brain .. I don't believe any of this of course. As a remark today on the radio .. 'The self is very hard to define, particularly when people suffer from dementia and alzheimers' .. where has the self gone then ?

Better to have some bright young scientist cutting you up into interesting sections than being frizzled or rotting under the earth.. brrrrr. :D

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LOL Lilly ... well, probably only cup of tea anyway. x

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Threts are not nice coming from a Goddess kate:D

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Hopefully be on Granada Reports tonight, unless a more worthy news story comes along.

Plugged the new support group here in Hyndburn/Ribble Valley, which I hope they'll show.

Re: Parkinson's Disease Society new local group
 

Glad you mentioned that Rindi don't usually watch Granada Reports as I'm usually watching Eggheads, I'll set Sky + and keep it for posterity:D

Re: Parkinson's Disease Society new local group
 

Me too.:D

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Just watched it, well done you:)

Re: Parkinson's Disease Society new local group
 

Yes, absolutely, well done to you. You came across really well and got the points across.

It's quite hard to stand up and be counted on any issue but it's important to get these things out in the open.

Well done.

Any hey - I got my email read out!!!! Whoohooo.

Re: Parkinson's Disease Society new local group
 

Only just seen these latest posts so i'm afraid i missed the programme, however i did see Jane Asher on BBC Morning News yesterday. I notice both she and Jeremy Paxman have donated their Brains, and i must admit this is something i am going to consider very seriously, i guess its not something you jump into, but its a subject and illness very close to my heart, as my Father who died last year, suffered from Parkinsons for many years and i was his carer, and i know the effects that the illness can have and that also its one of those illnesses that whilst always being talked about as being on the cusp of a major breakthrough, is not widely understood, both by the general public, and indeed the medical profession as well. Dads experience in hospital is not something i would like to see many others have to endure. We've always given to the PDS, indeed we had donations for them at Dads Funeral instead of flowers, as i know this is what he would have wanted. So it does feel right to me to be able to help research by Brain donation, and i'm pretty sure i'm going to sign up for this.

On a side issue Gary, i never realised that you used to work in Savile Row. I was watching a series of progs recently on freeview about Savile Row, and it was really interesting indeed. Fascinating history, and full of characters!

Best Regards - Taggy

Re: Parkinson's Disease Society new local group
 

Well Done Rindy love. I think you came across really well.:) (oh and that brew looked good too);):D

Re: Parkinson's Disease Society new local group
 

Thanks, I tried my best, and feel I've done my bit to raise awareness this week.

They were here for over an hour, and they didn't broadcast the bits I'd have chosen to show, things that are important to me, like the positive breakthroughs that are happening all the time in medicine, but I suppose that's just the control freak in me, and I should be happy with any publicity that raises awareness.:D

Off to start dieting now.:D

Re: Parkinson's Disease Society new local group
 

They keep saying tailors, which you're right, they are all in and around Saville Row. I was actually creative director for a shirt makers, the only one which is still privately owned, all of whom are based at the other side of Piccadilly in Jermyn Street.

Re: Parkinson's Disease Society new local group
 

....near my favourite Cheese shop Gary...Paxton and Whitfield!!! Lovely, Lovely can smell it now!!...Magpie preferred the smell at Floris, just up the street!!:rolleyes:

Best Regards - Taggy

Re: Parkinson's Disease Society new local group
 

watched it thought ya did a great job in a limited time, use that control freak in ya mate n try fer a documentary, if ya could get one of them it should really help ya raise awareness.;)

Re: Parkinson's Disease Society new local group
 

Ah gee! I read this post and forgot all about it at 6. :( Do ITV do regional catchups?

Re: Parkinson's Disease Society new local group
 

damn I missed it due to still being at work...did they say it would be repeated after the 10 o'clock news??

Was there any mention that you used to frequent the underside of bridges in glasgow, never mind the shirt makers on saville row :D ;)

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Have recorded it on my PCTV .. but don't think I can pull it out ?

Tried with some snapshots, but goes into this file, and again struggling to convert on to here.

Well done Garinda, proud of ya' .. x

Re: Parkinson's Disease Society new local group
 

Looks like they are still working on this Andrew:

ITV Granada

Re: Parkinson's Disease Society new local group
 

Watched it this morning Rindi, first class effort mate, well done, it surprising how some people freeze when they have a camera in their face, but you came across absolutely perfect and there's one thing for me, at least I'll know you know if I bump into you in the street :D

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn and Ribble Valley Parkinson's disease support group will be next Saturday, 2nd of May 2009.

11.30 am - 1.30 pm in the Supper Room, Accrington Town Hall.
(It's on the first floor but there is lift access.)

We will enjoy sharing a Jacob's Join lunch together, and a warm welcome will be extended to everyone who's been affected by PD, either themselves or someone close.

Re: Parkinson's Disease Society new local group
 

The Hyndburn and Ribble Valley Parkinson’s Disease support group will next meet in the Supper Room, Accrington Town Hall, on Saturday 4th July, 11.30am -1.30pm.. There will be a Jacob’s Join lunch, and a talk by a representative from Carers Link.





A warm welcome will be extended to anyone who'd like to come along, for a very informal meet and greet.

:)

Re: Parkinson's Disease Society new local group
 

Rindi don't mind me asking, I maybe a bit thick, I've often heard of but ain't a clue what a Jacob's Join lunch is:confused:

Re: Parkinson's Disease Society new local group
 

Jacobs join is where everyone contributes to the lunch or party that are they are attending and they all bring different selections of food and drink.

Re: Parkinson's Disease Society new local group
 

Thank you, yes that's it.

Though people are more than welcome to come and have lunch with us if they don't want to bring food.

I thought it was quite a common term.

'The term Jacob’s join is well known in and around Lancashire. Eric Partridge and Nigel Rees both record that people from that English county have told them about it. However, nobody seems to know where it comes from. This is hardly surprising: there are many such sayings, often with quite wide circulations, whose origins are totally obscure. In this case, the connection is presumably with the biblical Jacob, he of Jacob’s ladder. Could it refer to the mess of pottage (a dish of stew, in modern language) for which, the Bible tells us, Esau sold his birthright to his twin brother Jacob?.'

http://www.worldwidewords.org/qa/qa-jac1.htm

It must be my caring/sharing Methodist background.

Perhaps Jaysay hasn't heard of it because as a Tory produce should equal profit.:D

Re: Parkinson's Disease Society new local group
 

On the contry Rindi as a Tory I'll join with anybody and then make a profit:Danyway many thanks for the info, only Mez attually rang me to give me the full SP on Jacobs Join. :D In fact its like bottle party really where everybody brinks a bottle of cheap sherry then opt for drnking whisky:D

Re: Parkinson's Disease Society new local group
 

yer not alone i hadn't a clue either.:D;)

Re: Parkinson's Disease Society new local group
 

I knew - maybe it was a Methodist thing.
I had a methodist wedding first time around, and the guests toasted the bride and groom in Cidona :rolleyes:

Re: Parkinson's Disease Society new local group
 

In Cidona? OK, where's that - Spain? :D

I'm guessing it's some kind of non-alcoholic beverage and I'm not well acquainted with them. What, exactly, is it? :confused:

Re: Parkinson's Disease Society new local group
 

Non alcoholic cider

PS with a welsh methodist mother in law life wasn't easy - eg 'no washing to be hung out on a Sunday', and 'that lawn will be nice for chapel coffee mornings'

Re: Parkinson's Disease Society new local group
 

I've been to them at Anglican churches too. So not just a Methodist thing.

On the national PDS site, based in London, they've changed Jacob's Join to 'bring and share lunch'.

So those southern heathens were in the dark too.

Parkinson's Disease Society - Hyndburn and Ribble Valley Support Group

:D

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Methodist Margaret:D:D:D you've made me smile, can remember when I was a teenger always went to th methodist youth club on Friday night, well that was the second port of call on the night the first one was the Bay Horse, didn't go down too well at the second venue:D

Re: Parkinson's Disease Society new local group
 

My thanks to the little girl and her parents, who this week dropped off a bucket of money for the Hyndburn and Ribble Valley Parkinson's disease support group.

Caring Clitheroe pupil's charity pyjama party - Clitheroe Today

It's much appreciated, and will be used wisely.

Re: Parkinson's Disease Society new local group
 

It makes everything worth while when people do things like that Rindi

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn & Ribble Valley Parkinson’s disease support group is on Saturday 5th September, in the Supper Room at Accrington Town Hall.
Jacob’s join shared lunch, and a warm welcome extended to old and new members.
(Wheelchair access, and also a lift to the first floor.)

Re: Parkinson's Disease Society new local group
 

Whoops!

An indication of the time it's on might be useful.:o

11.30 am - 1.30 pm.

:D

Re: Parkinson's Disease Society new local group
 

I've noticed that Muhammad Ali is in Manchester today and is at a dinner tonight at Old Trafford in aid of his Parkinson's disease charity Rindi

Re: Parkinson's Disease Society new local group
 

The top boy Ali in town?...I must admit I don't even watch more than the first 3 minutes of the news but never knew Ali was up Manchester.

Re: Parkinson's Disease Society new local group
 

It was on both local news channels.

It was quite sad to see the state of his health, but great to see the massive respect he still has.

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn and Ribble Valley Parkinson’s disease support group will be held on Saturday 7th November, 11-30 am – 1.30 pm, in the Supper Room, Accrington Town Hall. (There is lift access to the first floor.)
A warm welcome will be extended to all who are affected by Parkinson’s, and there’ll be a bring and share lunch, and an informal talk by a representative from the Expert Patient programme.

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn and Ribble Valley Parkinson’s disease support group will be held on Saturday 9th January, in the Supper Room of Accrington Town Hall, 11am – 2pm.


We plan to celebrate our first year as a group. This month lunch will be catered for, and we will be entertained by world renowned guitarist Robin Hill, who’s performed with everyone from Pavarotti and Russell Watson, to Deep Purple.

A warm welcome will be extended to old and new friends affected by Parkinson’s.

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Sadly this event has now been cancelled, because of the dangerous weather conditions.

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn and Ribble Valley Parkinson’s disease support group is on Saturday 6th March, in the Supper Room at Accrington Town Hall, 11.30am – 1.30pm.
This month lunch will be catered for, to belatedly celebrate our first year.
A warm welcome will be extended to anyone affected by Parkinson’s

Re: Parkinson's Disease Society new local group
 

Thats good to know - have you contacted Carers LInk in Accrington as I'm sure they would be keen to spread the word.Also Carers Contact cover Burnley Pendle and Rossendale and I'm sure they would be keen to pass this information on.Good luck.

Re: Parkinson's Disease Society new local group
 

Thank you.

Carers Link have already kindly come to one of our meetings, and given us a talk about their work.

We do have members from both Burnley and Rossendale, but offically those locations fall under other Parkinson's Society group's areas.

I post details of our meetings on forums, and newpapers in those areas, as well as Hyndburn and the Ribble Valley, and everyone is welcomed at our informal lunch meetings.

:)

Re: Parkinson's Disease Society new local group
 

The 19th - 25th April, 2010 is Parkinson's Awareness Week.

I'm being interviewed tomorrow by radio station 2BR, to talk about the disease, and the support that's available locally, from Parkinson's UK, the new name for the Parkinson's Disease Society.

It's pre-recorded, so I'm not sure when it will be broadcast, but will post later if I get to know.

So far this is the only local interview we're doing, though I am doing some more with national publications.

Hopefully I'll be able to get a good plug for the Hyndburn and Ribble Valley Support Group, and alert more people that we're here if they need us.

As a new group, with attendance well over 40 at our meetings, we are seen as one of the successful branches, and feel happy we are obviously needed as a support group in this area.

We are genuinely thrilled to be supported by H.B.C., more about that next month.

Re: Parkinson's Disease Society new local group
 

I'd just like to mention some of what we did with the kind donation from H.B.C. last year.

Firstly it meant we were able to book and pay for the Supper Room at the Town Hall. Allowing us to hold the meetings in a central location, that seems easily accessible to most people, and which is certainly backed up by the numbers that we have attending.

We also used some of the money to produce information packs, for neurologists to give to newly diagnosed patients. Personally I remember feeling very lost when this happened to me. Only being told that Parkinson's disease is degenerative, and incurrable. I wasn't aware of the charity Parkinson's UK, and that there was help and support out there. Hopefully this will no longer be the case, in this area.

We've also produced information publicising our existence, which has been sent out to doctors' surgeries, chemists, libraries, and community centres. This lets people know we're here, and they are able to call a local person, who can hopefully offer support, advice, and even just a friendly ear, while people come to terms with what's happened to them.

It's been extremely useful, and we're very grateful for the support received.

Re: Parkinson's Disease Society new local group
 

The interview will be broadcast next Monday the 19th, the start of Parkinson's Awareness Week, on the hour, starting at 11am, so I think it'll be a short soundbite on the news.

I did plug the local group, and hope they leave that in.

Re: Parkinson's Disease Society new local group
 

The 2BR interview has lead to doing another one this morning, with a foreign station.

Sunrise Radio in Yorkshire!

Re: Parkinson's Disease Society new local group
 

For anyone interested: BBC News - 'I had Parkinson's disease at 19'

Re: Parkinson's Disease Society new local group
 

On behalf of the Hyndburn and Ribble Valley Parkinson's disease support group, I'd like to thank Hyndburn Borough Council for another kind donation of £250.00, which will help with our running costs, and will ensure we can afford to hire the Supper Room at the Town Hall for another year.

I've received three phone calls this week from people in Hyndburn, newly diagnosed with Parkinson's. To be able to let them know there is help and support available locally is a great comfort, and that is faciliated by us being given this grant.

Thank you very much. It's most appreciated.

My personal thanks go to my own councillor, Peter Britcliffe. Without his help and advice I wouldn't have known that grants such as this are available to charities. Your support has been invaluable.

Re: Parkinson's Disease Society new local group
 

Saw your pic in the paper this week rindy .. and you got a mention in the leaders column ...:D:D:D

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I'm the smart looking one, in a jacket.

:D

Re: Parkinson's Disease Society new local group
 

Just like Ciccy and Ada:p:p:p:D (private joke):D

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn & Ribble Valley support group will be on Saturday 3rd July, in the Supper Room at Accrington Town Hall, 11.30am – 1.30pm.

We’ll bring food, and enjoy our usual shared lunch.

The speaker this month will be local homeopath, Accy Web's Nicola68, who’ll talk about how homeopathy can help some of the symptoms of Parkinson’s.

A warm welcome will be extended to anyone who has Parkinson’s, or whose life has been affected by it, such as having a family member with it, etc.

Re: Parkinson's Disease Society new local group
 

Now I've seen the photo, no doubt you'll be having it framed and will take pride of place on the mantle piece of Garinda Towers estate:D

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn and Ribble Valley Parkinson’s disease support group will be held on Saturday 4th September, 2010, in the Supper Room at Accrington Town Hall, 11.30am – 1.00pm.

Guest speaker will be Russ Bury of Tempest Training and Martial Arts, who’ll talk about the benefits exercise like Thai Chi can bring to patients.

There’ll be the usual bring and share Jacob’s join lunch.

Adele Ewens, the area Parkinson’s support worker, will be in attendance, for anyone who needs more practical and/or legal advice.

A warm welcome will be extended to old and new friends, as well as the usual friendship and support the group aims to offer.

Re: Parkinson's Disease Society new local group
 

Offically found out today that a grant we applied for, has been succesful.

Small Sparks have awarded us the maximum amount of money, £500. Which we intend to use to produce information packs about Parkinson's disease, telling all about the charity Parkinson's UK (formerly known as the Parkinson's Disease Society), and the work they do both nationally, and locally.

The packs are to be given to the areas' neurologists, who will then hopefully pass on the information to new patients, that there is help and support out there, and it's not all doom and gloom.

Peter Britcliffe mentioned the grants to me, but it was Gayle Knight who encouraged me to apply, and emailed me the application forms.

On behalf of the Hyndburn & Ribble Valley Parkinson's support group, I'd like to say a massive thank you to Gayle. Your help and support helped immensely. Without you we wouldn't have this valuable grant.

Hopefully the money will help those newly diagnosed realise that although living with this degenerative, incurable disease, is initially scary, it is possible to live a fruitful, and happy life.

:)