Re: Parkinson's Disease Society new local group
 

It makes everything worth while when people do things like that Rindi

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn & Ribble Valley Parkinson’s disease support group is on Saturday 5th September, in the Supper Room at Accrington Town Hall.
Jacob’s join shared lunch, and a warm welcome extended to old and new members.
(Wheelchair access, and also a lift to the first floor.)

Re: Parkinson's Disease Society new local group
 

Whoops!

An indication of the time it's on might be useful.:o

11.30 am - 1.30 pm.

:D

Re: Parkinson's Disease Society new local group
 

I've noticed that Muhammad Ali is in Manchester today and is at a dinner tonight at Old Trafford in aid of his Parkinson's disease charity Rindi

Re: Parkinson's Disease Society new local group
 

The top boy Ali in town?...I must admit I don't even watch more than the first 3 minutes of the news but never knew Ali was up Manchester.

Re: Parkinson's Disease Society new local group
 

It was on both local news channels.

It was quite sad to see the state of his health, but great to see the massive respect he still has.

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn and Ribble Valley Parkinson’s disease support group will be held on Saturday 7th November, 11-30 am – 1.30 pm, in the Supper Room, Accrington Town Hall. (There is lift access to the first floor.)
A warm welcome will be extended to all who are affected by Parkinson’s, and there’ll be a bring and share lunch, and an informal talk by a representative from the Expert Patient programme.

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn and Ribble Valley Parkinson’s disease support group will be held on Saturday 9th January, in the Supper Room of Accrington Town Hall, 11am – 2pm.


We plan to celebrate our first year as a group. This month lunch will be catered for, and we will be entertained by world renowned guitarist Robin Hill, who’s performed with everyone from Pavarotti and Russell Watson, to Deep Purple.

A warm welcome will be extended to old and new friends affected by Parkinson’s.

Re: Parkinson's Disease Society new local group
 

Sadly this event has now been cancelled, because of the dangerous weather conditions.

Re: Parkinson's Disease Society new local group
 

The next meeting of the Hyndburn and Ribble Valley Parkinson’s disease support group is on Saturday 6th March, in the Supper Room at Accrington Town Hall, 11.30am – 1.30pm.
This month lunch will be catered for, to belatedly celebrate our first year.
A warm welcome will be extended to anyone affected by Parkinson’s

Re: Parkinson's Disease Society new local group
 

Thats good to know - have you contacted Carers LInk in Accrington as I'm sure they would be keen to spread the word.Also Carers Contact cover Burnley Pendle and Rossendale and I'm sure they would be keen to pass this information on.Good luck.

Re: Parkinson's Disease Society new local group
 

Thank you.

Carers Link have already kindly come to one of our meetings, and given us a talk about their work.

We do have members from both Burnley and Rossendale, but offically those locations fall under other Parkinson's Society group's areas.

I post details of our meetings on forums, and newpapers in those areas, as well as Hyndburn and the Ribble Valley, and everyone is welcomed at our informal lunch meetings.

:)

Re: Parkinson's Disease Society new local group
 

The 19th - 25th April, 2010 is Parkinson's Awareness Week.

I'm being interviewed tomorrow by radio station 2BR, to talk about the disease, and the support that's available locally, from Parkinson's UK, the new name for the Parkinson's Disease Society.

It's pre-recorded, so I'm not sure when it will be broadcast, but will post later if I get to know.

So far this is the only local interview we're doing, though I am doing some more with national publications.

Hopefully I'll be able to get a good plug for the Hyndburn and Ribble Valley Support Group, and alert more people that we're here if they need us.

As a new group, with attendance well over 40 at our meetings, we are seen as one of the successful branches, and feel happy we are obviously needed as a support group in this area.

We are genuinely thrilled to be supported by H.B.C., more about that next month.

Re: Parkinson's Disease Society new local group
 

I'd just like to mention some of what we did with the kind donation from H.B.C. last year.

Firstly it meant we were able to book and pay for the Supper Room at the Town Hall. Allowing us to hold the meetings in a central location, that seems easily accessible to most people, and which is certainly backed up by the numbers that we have attending.

We also used some of the money to produce information packs, for neurologists to give to newly diagnosed patients. Personally I remember feeling very lost when this happened to me. Only being told that Parkinson's disease is degenerative, and incurrable. I wasn't aware of the charity Parkinson's UK, and that there was help and support out there. Hopefully this will no longer be the case, in this area.

We've also produced information publicising our existence, which has been sent out to doctors' surgeries, chemists, libraries, and community centres. This lets people know we're here, and they are able to call a local person, who can hopefully offer support, advice, and even just a friendly ear, while people come to terms with what's happened to them.

It's been extremely useful, and we're very grateful for the support received.

Re: Parkinson's Disease Society new local group
 

The interview will be broadcast next Monday the 19th, the start of Parkinson's Awareness Week, on the hour, starting at 11am, so I think it'll be a short soundbite on the news.

I did plug the local group, and hope they leave that in.